On a journey.. 

Assalamualaykum/morning, all! 

How are you all? It’s been such a long time since I’ve interacted with everyone, I’ve missed that. I hope you’ve all been well and are as happy and healthy as can be. 

I’m at an interesting phase in my life right now.. Not quite sure where I’m headed but determined to enjoy the journey! 

It’s been a rocky few weeks. My beloved grandfather passed away recently and the grief is still raw. Please remember him in your prayers. He really was a special person. He was like a father to me and we all feel his loss. 

And then my father suffered a heart attack. It was rather unexpected – he’d been having  trouble for a while but in typical bloke style, decided it was nothing and he’d be all macho. We’ve since found out that he has coronary heart disease – and he’s since decided that he’s very young and fit and of COURSE he doesn’t have to take precautions! I’ve informed him that any more of his solo shopping excursions (he’s not supposed to do any heavy lifting) will result in me calling round to all his usual shops and sharing his picture with strict instructions to call us if they see him. I’m a great daughter, aren’t I?! 😀 he told the nurses not to tell me ANYTHING about his health (even though I put myself down as his next of kin..) as I’m an ‘interfering busybody’. Got to laugh, right? I know how hospitals work and I’m determined to help him regain his health inshaAllah. 

And now to my big news.. A couple of months ago, I met an amazing lady called Helen Bracey. She is quite honestly one of the most inspirational people I’ve ever met! Helen encouraged me to join her team of Advocate Superheroes, which I did. 

It’s absolutely brilliant! I’m now a Patient Advocate for Convatec. Check out this site for more info and to meet the rest of my fantastic team. Convatec have launched an innovative service called Me+ which aims to help and support those who’ve had Ostomy surgery. There’ll be of information, guidance, support and help available. I wish something like this had been around when I had had my surgery! 

So what does the life of an Advocate Superhero involve? Well, so far I’ve delivered a talk, been to Head Office where I met the rest of the team, got to see ostomy bags being made in the factory (this was SO COOL!), spoke to the brilliant scientists who come up with new ideas, and I’m currently on the train, on my way to another talk! It’s a beautiful day and I’m so grateful for this opportunity. I honestly did not think that I would be doing something so worthwhile. It’s wonderful meeting so many new people and hearing their stories. 

The nerves are settling in now, I’m about half an hour away from Kettering where the talk will take place! So in a short while I’ll be standing at the front of a room talking about myself. And poo. Yay! :p 

I’ve been thinking.. I’ve faced huge trials these few weeks. But Alhamdulillah I keep thinking that I got through the awful, awful times last year when my world was so dark and I felt as though I’d never be happy again. This was all with the help of the Almighty. Maybe, just maybe.. That was to prepare me for this. Having dealt with such raw grief, I know I can get through the pain of my grandfather’s death inshaAllah. Although this pain is more brutal, I do feel hopeful that it won’t knock me out of sync. Does that make sense? I tend to ramble quite a bit so forgive me if it doesn’t. 

Oh, I’ve saved the best news till last.. Alhamdulillah I CAN SEE!!! I was given a scleral lens for my left eye and it’s BRILLIANT. I’m ably to wear it for a couple of hours a day so I do still have my cane with me in case I need to remove the lens during that time. I also need my white cane in the evening. This is such brilliant progress, it’s given me a huge boost. 

I must stop writing here, the train is pulling into Kettering and I must gather my thoughts before the talk 🙂 

Take care everyone. 

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6 thoughts on “On a journey.. 

  1. Salaam Gutless Ninja, Been subscribed to your blog for over a year now I think. Amazing to read your updates and see the wave of your life form. You’re truly an inspiration. I work with Muslim Faith Primary and Secondary Schools around the country and would love for you to consider sharing your story with some of the pupils. If you feel you’d be up to the task, please feel free to get back to me. Jazakallah Khair

    Liked by 1 person

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